Recently, I participated in an amazing campaign, “Sing for Blair”. I sang an original song that I wrote for Blair after hearing about all she has been through.
Blair is a wonderful girl and I’m so honored to be a part of Sing for Blair. You can see the video of us below.
Here is a little bit of info about this campaign and Blair:
At the age of 6, Blair Chapin was diagnosed with Sanfilippo Syndrome. Doctors told her parents she would slowly slip into the depths of the disease. First she would stop talking, become unable to feed herself, lose her ability to walk, then eventually her body would give up. Her life expectancy is in her teens.
Blair is 12. Her life story can be found at TheBlairBanner.com
There is promising research and a cure if right around the corner. A cure that could help Blair and other children with Sanfilippo.
Blair no longer talks and she is unstable on her feet. Her parents day is designed around keeping her as comfortable as possible.
One thing that comforts Blair is music and songs. Her family has started a campaign called “Sing for Blair, Fund a Cure” in hopes of finding others…musicians, choirs, actors, athletes… to “Sing for Blair and Fund a Cure” before it is too late.
Please consider donating (100% for research) or “sharing”. With every share or “like” we just might convince others to “sing for Blair”!
For more information, make sure to visit SingForBlair.com!